Still Waiting...

They still haven't been able to remove Tyler's neck catheter.  They could only get his platelets up to 31 yesterday, so the surgeons wouldn't do it.  They tried to schedule the surgery for today, but I guess that the surgeons couldn't find the room in their schedule.  Hopefully tomorrow will be the day....

Tyler continues to get better at moving around again, so that is great news.

He has finished his chemo treatments, so now we are just cruising towards the bottom of the trough and hoping to improve again afterwards.  The worst day is supposed to be somewhere about 10-14 days after the first chemo treatment, so we have a few days to go until then.  He is experiencing increased pain in his mouth and throat, which makes it difficult for him to eat right now, but he is a trooper!

He has Magic Mouthwash, which is a mixture of lidocaine and benadryl, to slightly numb up his mouth throughout the day.  The cells lining your digestive tract are short lived cells, because we have to be able to eat things after burning our tongues or such.  Because of this those cells are particularly responsive to chemotherapy and can lead to sores and ulcers, mostly in the mouth.  With the radiation that Tyler received before his transplant, he got really bad mucositis in his esophagus.  This time the sores are located in his mouth, more than his throat.

We are both hoping that the sores don't get so bad that Tyler has to stop eating, but the doctors are prepared for that just in case.