Sunday, August 30, 2009

Light the Night

Tyler and I are again raising money for the Leukemia and Lymphoma Society through the Light the Night walk. This year's walk is scheduled for Saturday, September 26th and is certain to be a fabulous event again. This will be our 3rd year of participating and I am hoping to make it our best year yet!

If you would like to join our team and walk with us, please go to and click Join at the bottom.

If you would like to donate to our team, please click

Thank you so much for your continued support!

Saturday, August 29, 2009

Fiesta in Chelan

My side of the family held a week long reunion at Lake Chelan, thanks to my grandparents' generosity. I wish I could have spent more time with my family, but I thoroughly enjoyed every minute that I could steal away!

One family brought mustaches for us to wear during Mexican Fiesta night and Tyler and I are proudly modeling ours in the photo. I'm thinking we should both grow real mustaches after seeing how dashing we look with our taped on version. Actually, you can't see how much hair Tyler has grown over the past few months, but he is looking pretty sharp again.

There were 4 babies born into our family in the last year and it was a beautiful thing to get to see them becoming more like little kids and less like little babies. All of the kids (including the older Mia, Abbie, and James) inject so much life into family gatherings... I hadn't realized how boring I had gotten as an adult until I got to start playing with kids again.

Several months ago I posted a picture of me feeding my cousin's daughter, Audrie. You can see the original photo here.

Audrie today looks like this:

Isn't she adorable?? She was a charming little girl, filled with smiles! I think she could steal Tyler away from me, if she was just a year or two older!

As you can see from the lack of posts, life is incredibly good for us these days! Tyler is starting to do more exercise without his foot brace and notices increased movement in his foot. The photosensitivity in his eyes is much improved, so he finds it easier to be outside on sunny days again. He looks FANTASTIC and we are just so very thankful that we have come through this journey with his health coming back. Many thanks for traveling this road with us!!

Friday, August 7, 2009

Joining Two of our Passions

From the Sounders Blog:

The Sounders FC invites fans to take part in the Sounders FC Bone Marrow Drive. The Sounders FC have teamed up with defender Tyrone Marshall in an effort to support Marcia Williams’ battle with cancer. Marshall and some of his teammates will host the Sounders FC Bone Marrow Drive at Qwest Field on Aug. 18 from 4-7 p.m.

Marcia is the wife of Real Salt Lake’s Andy Williams, a close friend of Tyrone.

“I’ve known Marcia, Andy’s wife, since Miami in 2000/2001, so we have gone back awhile. It’s a tough feeling to know someone that close who is struggling with a life-threatening illness,” said Marshall.

Fans can help by attending the drive on August 18th and joining the National Bone Marrow Registry, a very quick and easy process.

“A lot of people think they are going to be stuck by a needle, however it is just a little swab in your mouth and it is easy. In addition to filling out some paperwork, the cheek swab won’t take more than two or three minutes. “

Patients are more likely to find a compatible donor within their own racial and ethnic background, which is why Puget Sound Blood Center is requesting a diverse group of donors. Currently the national registry for bone marrow is 75% Caucasian.

For information on Marcia’s fight visit and for information on joining the National Bone Marrow Registry visit

Parking will be complimentary in the north parking lot.

Thursday, August 6, 2009

Be the Match

You can save a life! Watch the video to see how...

Monday, August 3, 2009

Strike Out Leukemia!

Strike Out Leukemia Night
Angels vs. Mariners
Wednesday, September 2, 2009 - 3:40 p.m.

Enjoy a summer afternoon at Safeco Field while supporting a great cause! Catch the Mariners at a discounted price, exclusive to you through this online offer. A portion of the proceeds from tickets purchased through this special offer will benefit The Leukemia & Lymphoma Society. Tickets can be purchased online and credited towards our Team Firefly fundraising for Light the Night!

DEADLINE TO PURCHASE: Monday, August 31 at 5:00 p.m.

Game Date:
• Wednesday, September 2 vs. Los Angeles Angels - 3:40 p.m.

• $15 View Reserved (normally $20)
• $32 Field Level Seating (normally $40)
• $7 from each ticket sold benefits The Leukemia & Lymphoma Society!

***Special Note for our Friends and Family***
In order to credit Team Firefly's fundraising efforts, you must send an email with the subject: MARINERS NIGHT to with the following information:

1. Ticket purchaser name
2. Number of tickets purchased
3. Participant name you want credited (Mandy Bledsoe or your name if you are participating)
4. Light the Night: Team Firefly

Sunday, August 2, 2009

Thank You Novartis!

At his last doctor's visit, Tyler learned about a great program sponsored by Novartis, the manufacturer of both Gleevec and Tasigna. Apparently the company will actually cover some of the copay's for the next few months. While the copay is only $35 per month (thank goodness for medical insurance!!), we are still happy to have someone else pick up the bill for a few months.

Many of our readers may know someone else touched by blood cancers. If your friends/family are taking Gleevec or Tasigna, you might have them look into this copay assistance program too.