Friday, January 2, 2009

The Next to Last Puncture...

Today was a big day for us. Tyler's transplant protocol officially begins next week, IF the results of today's lumbar puncture show no signs of leukemia in his spinal fluid (CSF). I'm nervous about the wait to next week to get the information back, but there is nothing to be done other than wait. The doctors essentially told us that they don't know what they'll do if the spinal fluid is not still clear. I'm glad they are checking, I really am, as Tyler's transplant is certain to fail if there is any leukemia in the CSF. But at the same time, I really want to know and start dealing with the answer. We've been plagued with bad news throughout Tyler's treatment, so it's hard not expect it. I'm praying hard that everything will be a "go" for transplantation on schedule.

We also met with the GI doctors to find out why Tyler is still struggling so much with eating. He doesn't feel a great deal of nausea day to day, but struggles to have an appetite and to keep his food down consistently. The leading theory after their investigation is that Tyler's medications are responsible for his stomach discomfort. We're switching out one of his medications over the weekend to see if that helps. Sadly, I'm now thinking that it won't.

Happy New Year to all! We wish you good health and good cheer for 2009.

Mandy

1 comment:

  1. Shannon Caughell MillerJanuary 5, 2009 at 7:50 PM

    Mandy! I am praying for you guys! I try to check your blog everyday to know how you are doing....hang in there this week while you wait!

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