Wednesday, January 5, 2011

Still sleeping

Tyler has been sleeping since yesterday morning. Selfishly, I wish that he would wake up for just a little bit, but it doesn't feel right to withhold pain meds just to see if he will open his eyes again.

He definitely responds to discomfort or pain, as he mumbles and moans a lot when we turn him from side to side (to avoid pressure sores), but is basically unresponsive otherwise.

I have been reading the comments and e-mails and Facebook postings to him, just in case he can still hear us. It's hard to make decisions on which treatments he would want and which he would decline, which ones might by him a little more quality time and which ones might just make him more miserable.

Our families have been helping so much too. It's got to be so hard to see your child this sick, but they are here whenever we need them and are helping me to get through this.

Thanks for the prayers and encouragement, as we go through a particularly difficult part of the battle.


  1. Mandy and Tyler-- There just aren't words for how much we love and admire you both. You are in our constant prayers.
    All our love,
    Leanne and Pat

  2. Mandy and Tyler,

    We're thinking of both of you and hoping that Tyler is as comfortable as he can be.

    Thanks for sharing, Mandy. I can't imagine how tough it must be to keep updating the blog at this time, but we really appreciate knowing how things are progressing. You're a rock.

    - Leif & Patty

  3. I wish you guys didn't have to go through this. You're both amazing. You're in my thoughts - K Lui

  4. Dear Mandy, I haven't seen Tyler since school days. We've never met, and I only learned about your shared struggle a couple of days ago. but this one entry is so clearly the standout for me. To want to see him open his eyes, one last time, and decide to let go of that for his comfort. I'm so very sorry for your loss. Deborah Kelch