Tuesday, April 28, 2009

Day 91 - Nine Days to Go!

It feels like smooth sailing to us these days. We had a great weekend, with my non-stop eating machine (Tyler) keeping me in the kitchen much of the time. I'm not complaining at all. It's a treat to be able to cook for him and have him actually enjoy eating. I think he probably ate 6 full meals each day over the weekend.

We have talked about how refreshing it is that he is actually hungry again and has cravings for different things. Added to that, Ty has had a release from some of his diet retrictions which have allowed us to eat some of our favorite foods again.

With only 9 days to go at the SCCA, I am getting so excited to mark the passing of that milestone. This time since the transplant has been so much easier than the leadup to it. I'm actually thankful that we got much of the stress and agony done in the fall, although we are still suffering from some of those effects. His stomach issues have definitely improved and we are hopeful that his foot will be healing over the next several months.

His physical therapy is going well and they are starting to wean him off of the Tacrolimus, which is his immunosuppressant. Reducing this medication should allow his tremors to decrease and his neuropathy to decrease. I'm getting excited to see him moving around yet.

We have been charged to keep an eye out for rashes or intestinal issues which can be a sign of Graft Versus Host Disease (GVHD), but they have a schedule that will implement. For this week, he is taking 2.5mg in the morning and 2mg at night. The only reduction was the nighttime dose for this week.

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