Just a quick note to share that Tyler and I finally go to come home from the hospital today! He is still dealing with most of the same issues, but the doctors finally said that they weren't doing anything in the hospital that we couldn't do at home. I am really looking forward to sleeping in my own bed tonight!
He will have follow up visits every other day at SCCA, so they will keep a close eye on him. We also need to connect with our team down in Houston to see what to do. Today is Tyler's last dose of ponatnib, so we really need to get back down there and get him another month of medicine. Because the medicine must be closely controlled through the clinical trial, Tyler has to get down to Houston to get refills. At this point, I think they might be the only ones that have the trial going right now.
Friday, November 26, 2010
Home again!
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We're glad you are back home. We have been thinking of you both. We hope you make it to Houston quickly. Is it ok to be off the drug for a few days? Maybe we will see you at SCCA again soon. Jeff will be there every other week for EKG. I thought Dr.Oehler mentioned doing the ponatnib trial here in Seattle soon?
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