Day 6

Well, its day 6 or for most everyone else Monday. So far I am feeling pretty good with the therapy. I have had some early morning mild headaches, and some mild muscle pain which was expected. I will be getting my bloodwork looked at this week at SCCA, and they will forward the results to Houston. Next week I will be headed back down to Houston for a day 15 check-up. They will do a physical, bloodwork, and a couple other tests. Day 22 will be back in Seattle for bloodwork, and then Day 28 back in Houston. They will be doing another Bone Marrow Aspiration at that time. That appointment will coincide with Day 1/Cycle 2........and this will repeat every 28 days.

At this time we are hoping to be able to transition to Seattle full time once the trial starts locally. Hopefully my doctors can convince the drug company to allow this. It seems to make sense, but we're unsure of what the rules will allow right now. My energy has been pretty good, my appetite has been great and I'm looking forward to seeing how the results of taking this new drug will play out.

I cant thank all of you enough, that have supported us so loyally all this time! Its very uplifting to know that so many people are there for us! We feel blessed to have such an amazing army of supporters, family, friends, and fellow survivors/caregivers helping us fight this disease every single day!

I will do my honest best to keep all of you updated as much as possible, but also I want you to know that most of the time I want to live my life as normally as possible. Sometimes that means there may be some stretches of silence. I also want to let you all know that if any of you need someone to talk to about issues you may be having dealing with cancer as a survivor, caregiver, or friend of someone you know..........please dont hesitate to reach out to me to talk about it. I wont have all the answers, but I may have some helpful words.

Tyler......(battling CML for 3 years and 8 months now).