Sunday, March 14, 2010

Looking for the Right Trail

With our meetings last week, I felt a little bit like we were lost in a forest and looking for the trail that would get us back home. 

The net result of the meetings is that the doctors don't know exactly what to do now.  We are pursuing some options with Clinical Trials out there, but our doctors have no say on whether or not Tyler will be able to join.  We are waiting to hear back from the study investigators.

He has signs of leukemia in his spinal fluid again, which is an exclusion criteria for the study that we are most interested in, so treating that is our first step.  Tyler will be receiving chemotherapy with injections into his spine for the next little bit of time, most likely two times per week.  He has had lumbar puntures throughout the process and they are not much fun.

Despite the news of frequent lumbar punctures, Tyler's spirits are good right now and the pain he was experiencing is completely gone.  He stopped taking the pain pills at the end of last week and is enjoying a return of his appetite with the switch away from Interferon.

So basically... things are good right now, except for the fact that we can't find the trail.

Thanks to all who continue to support us!  We feel so very blessed to have you in our lives and hope that we can repay the favor and encourage you when your spirits are low.


  1. Dear Mandy & Tyler,
    If only I had a compass or a map to help you find your way. I often felt like Nick & I were lost in a forest, never knowing what would jump out from behind a tree and scare the crap out of us. Always searching for the marked path. The doctors were always telling us Nick was off the path now so we were trekking through uncharted lands. Nick had to have many lumbar punctures and IT chemo. Uncomfortable is a nice way to put it...I will keep you both in my prayers. I will pray for the path to be illuminated for both of you. with fond regard, Diane

  2. I'm thinnking of you both every day and sending good thoughts. I'm glad that Tyler is no longer in pain, that is a blessing. Hoping that you will find the trail.

  3. Dear Mandy and Tyler...... sending tons of hopes, prayers, positive thoughts your way. I would go and clear you a new and solid path by hand if I thought it would help.
    love and light

  4. Mandy & Tyler, I pray that the path will lead you to the trail and an amazing clearing there filled with all good things. Your story makes my heart smile seeing your beautiful wedding photo and words of love but also ache for all you are going through. Praying for you both, DeeEtta